I'm really NOT crazy....well about this anyways!

So let me tell you all what a weird month we are having.

Poor little Kya has been back in the hospital for a little more than 2 weeks. She managed to come home to us for 10 days before (oddly enough) the PICU at Sacred Heart called us and asked us to bring her back in! That's a first let me tell you!

She had been having a difficult time for about 3 days prior with hyperventilating and that coupled with what they knew, turns out that Kya had a blood culture from her previous visit come out positive for MRSA (a really hard to kill staff infection), she needed to be put on IV antibiotics for a long while and get some fluid off her lungs.

So we dutifully brought her back and began her treatments to get her lungs healthy. A week goes by and she looks good, feels good, acts great and I was thinking we were heading home... NOT! I then found out that in order to treat the MRSA properly they needed to actually take out her Port-a-cath, a permanent central line under the skin & our ONLY I.V. access! So poor Kya went into surgery and had that removed, they put in a regular I.V access in one of her little decrepit veins and began her 14 days of Vancomyacin antibiotics.

The new plan was to have her "line free" for a few days and then put in a PIC line (an externally placed central line) to then finish her course of treatment in the comfort of our own home. Monday she gets the PIC and everything is going great! We are on schedule to go home Tuesday, I have my nurse meeting me and we are ready to go!

We show up at the hospital and out the clear blue, I begin to have this overwhelming feeling that I CAN NOT BRING HER HOME! The spirit so strongly was telling me that something was NOT right! Of course I become a complete basket case and start uncontrollably crying (thank you hormones!) and cannot for the life of me explain how strongly I feel like she is suppose to stay in the hospital. I give the staff several different reasons why I feel uncomfortable bringing her home (she had some clinical reasons which were justifiable) and I know they all think I am nuts, because I THINK I AM NUTS! But after making the decision I feel much better about everything, although I am still a crying basket case! (I really wanted her home!)

Wednesday I show up for my visit and guess what... The PIC line goes bad and they can't use it! ( Reason #1 why we would have had to be re-admitted had we gone home) So back to regular IV's until they get her in for a new one. Thursday a new PIC in the other arm.

Friday night guess who has a fever? You guessed it, Kya is running a 102 temp! (Reason #2 we would have been re-admitted had we gone home). Now Saturday rolls around and she is doing well, temp is controlled with Tylenol & Ibuprofen, she's needing more O2 than at home but she looks good, she is acting AWSOME and I'm feeling much better & validated about my crazy "over-reaction" with ensuing emotional breakdown! Since now she's started indicating that maybe she wasn't quite done being sick.

Sunday (today!) Last night I felt like I should stay the night here at the hospital so I had poor Jonathan drive me out at 12:oo in the morning! We visited with Kya and played she is SO HAPPY! He goes home & I pass out in the waiting room. It's 8am and Jake Stellmon was our nurse last night and he stops me in the hall...you will never guess what happened! Kya started Desating about 1 hour before (could not keep her oxygen levels up) and they could not figure out what she was doing, so they did an ultrasound on her chest. She has a plural efusion (hole in her lung) and needs a chest tube!!!!! (this would be reason #3 that going home would have been very short-term and potentially life threatening)

So today I am very grateful. I am grateful that I listened to the spirit. I don't often have experiences like this so I'm a little dense when it comes to knowing what the Lord wants me to do, but at least he knows my weaknesses and made sure I could figure it out! I am really grateful to have the gosple in my life and I am learning to appreciate how much knowledge that brings to me and how much more difficult my life could be if I did not have the Gosple!

I will update the blog in a day or two and let you all know how she is doing. Thanks so much for your well wishes and concern we really appreciate it!