We really are doing the Tango when it comes to Kya. Yesterday Kya was placed on Cpap (patient initiates breathing and the vent assists in filling the lungs) for about 8 hours. She did really well but we did not want to wear her out so they put her back on a rate of 13 breaths a minute to let her rest overnight.
The docs stopped the sedation medications in hopes of extubating today. This morning they tried the Cpap again and she only lasted 1 1/2 hours because she began to have apnea (stop breathing). She was put back on the rate to rest for a little while and around 3:00pm today they tried the Cpap again. She did nothing and I mean NOTHING! No breathing at all on her own, not a single breath. Needless to say we are back on the rate and partially sedated to keep her comfortable and she is pretty much riding the vent.
This evening she spiked a temp of 103.4 the poor kid feels horrible! Now we culture everything again (blood, urine, sputum) and wait to see what new thing she is growing or resisting. Like I said the Tango!
So we are waiting again.
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3 comments:
So sorry! Our prayers are with you always!
oh man!!! Sounds like a pretty frustrating Tango:( So sorry to hear..We continue to pray for her and you guys....She just needs to get better already right?? Sure miss you guys..
Oh boy. Tough little girl sounds a little tired for the tango. Sounds like she's septic? How are you holding up -- I imagine you're looking good on the outside...... not so good on the inside. Hang in there girlfriend. You guys are incredible - and one thing I know about all of you - is that whatever happens, you will be okay.... Kya is an amazing little girl - as a spirit, she's a giant. And no one who has spent time with her can deny that. I still remember looking into her eyes that first time on Peds.... saw her spirit and was truly amazed. We love you guys. Me, especially. Hugs out to you. Don't forget to breathe.
Love,
Kimberlee
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