I feel like we are kinda back-tracking here. Kya was very happy and energetic for the last 2 days and then yesterday she began to be very whinny and just OFF? Today she is miserable, whinny and crying a lot. I asked the nurse to turn up her oxygen because she was just sitting at like 86% oxygen saturation (our range should be above 92%) and now she is just resting somewhat, but occasionally burst out into tears. I think I will have them give her some Tylenol for discomfort, cause obviously something is bothering her!
I don't know as I have any good news. That's why my updates are slow to come. She is taking a long time to get better and is making VERY slow progress. In terms of comparison she looks 100% better than 8 days ago. just not any better from 4 days ago. So that is how things stand for now.
We have not seen the doctors today yet, so do not have an "official" update from them, but they pretty much listen to what I say anyways and we go with that. She is still coughing a lot of goop up and getting it cleared from her airway so that is a positive sign. the more she clears the healthier her lungs should get. Cross your fingers :)
I think the hardest part I have with being in the hospital is not being able to just do everything myself. I'm not shy about taking care of Kya's needs, but I don't know how to work these machines so I have to rely on the staff to take care of things for me and I AM NOT PATIENT! I still reposition her, suction, change diapers and I'll crawl into bed with her to snuggle, but it's not the same as at home and that sucks! I'm starting to really miss hanging out on the couch and having her draped over my lap while we snuggle for hours, since this is how she likes to be comforted when she does not feel good. It's much harder to "fix" her in this environment.
So it is today. I guess I'm a little whinny too!
Laura
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